PEPR TREASURE · Work Package 7 — SSH
The donor as a research subject
WP7 SSH chooses to start from the donor — and specifically from post-mortem donation — as a subject of research in the social sciences and humanities. Without setting recipients aside, it focuses on the link without which transplantation would not be possible.
- Post-mortem donation
- Ethics
- Interdisciplinary
- Participatory
An interdisciplinary and independent research space
At the heart of the work is analysing, without oversimplifying, the tension between respect for the person at the end of life, support for their loved ones, the experience of the caregivers who look after them, and the imperative of solidarity towards patients awaiting a transplant.
The ambition is to build an interdisciplinary, independent and rigorous research space, bringing together health sciences, social sciences and humanities, institutions, associations, user representatives and international partners. The goal: to produce new knowledge — to describe, understand, analyse and shed light on practices, organisations, lived experiences and controversies.
Three areas of work
- 1
Trust, acceptance, refusal and opposition
Understand the contemporary drivers of people’s relationship to donation, without reducing distrust to a mere lack of information.
- 2
Organisations and donor pathways
Analyse donation pathways by combining medical effectiveness, economic efficiency, ethical acceptability and psychological sustainability.
- 3
Ethics of innovation
Anticipate the transformations of donation and transplantation medicine, questioning their conditions of legitimacy, trust and acceptability.
The work begins: building methods, prioritising projects, producing new data and making WP7 a lasting space for critical, interdisciplinary and participatory research.